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Please use the Year first then search option to search specific report.
You can also select a specific category for reports/details by clicking buttons such as tissue-based, blood-based, MRI, etc
You may click on any report/image and zoom or download it , or close it and view others.
At the end , there is a section for google drive folder which has some more files,dicom etc.
Feel free to contact +91-8826533558 for any further details.
| Timeline / Period | Clinical / Diagnostic Update | Remark /Comment |
|---|---|---|
| 2023 Ending | Initial focal seizure episode. Increasing frequency (once a month to once a week) | Aura of a burning smell, urge to vomit (but no vomiting), symptoms increasing to lip-smacking |
| Jan 2024 | Consulted Neurologist , MRI done.Tumour detected | Started "Watch and Wait" on the tumor based on neurosurgeons' opinions, Started various epilepsy medicine to stop focal seizure. |
| Feb 2024 | Consulted Ophthalmology; right-sided homonymous hemianopia. No glasses. | No Glasses |
| August 2024 | Finally found a seizure medication regimen that worked, achieving seizure-free status. | Clobazam & Carbamazepine |
| Sept 2024 | Vision and eye squint | Vision degraded (major impact on the left eye), causing intermittent left-eye exotropia.Eye Glasses |
| Jan 2025 | Right Hand Grip weak | Granular control over right fingers was deteriorating. |
| April 2025 | Left pterional craniotomy | Around 20% of the tumor was removed, leaving 80%. Waiting for oncology reports |
| October 2025 to Feb 2026 | Tovorafenib Phase 2 trial and epilepsy medication adjustment path | Tappered,Switched to Lacosamide ,Brivaracetam and Clobazam . |
| March 2026 | Started Tovorafenib 350 mg once a week; neurological degradation occurred. | Raised ICP , Brainstem compression , Obstructive Hydrocephalus |
| April 2026 | VP shunt and craniotomy performed to relieve raised ICP and brainstem pressure | By the time shunt placed : Suspected episode of Neuropraxia / Stroke ,Right side Hemiparesis.Aditional 40% tumor removed, 30-40% remaining.Post craniotomy: Unconscious for many days |
| June 2026 | On way to recovery, Tumour new reports came | Conscious, walking, talking, and memory retained; currently on a inprogress recovery path for speech, hand, and facial motor skills |
Choose the case-report year first. The folder tabs below stay the same for both groups.
Below is a view of additional files (e.g., DICOM, reports) stored in the public Google Drive folder.